co-Ability, Aligned arguments for the dissolution of a human “centre”
To generate critical and new insights into our value system in human-centred societal challenges the experimental approach of Research through Design (RtD) and the power of critical disability studies explores philosophical and strategic possibilities to identifying how design helps to improve the experience of being human, and not
necessarily the user experience of a disabled person in prosthesis design development
Cross-border/international
Hungary
Finland
Member State(s), Western Balkans and other countries: Austria
{Empty}
It addresses urban-rural linkages
It refers to other types of transformations (soft investment)
No
Yes
2020 European Disability Forum and Oracle Award for a scholarship to researcher with disability
Yes
As an individual
First name: Renata Last name: Dezso Gender: Female Nationality: Hungary Address (country of permanent residence for individuals or address of the organisation)<br/>Street and number: Mosztar utca 12 Town: Budapest Postal code: 1141 Country: Hungary Direct Tel:+36 20 458 6889 E-mail:ren.dezso@gmail.com Website:https://www.renatadezso.com/portfolio/classic-layout/
To generate critical and new insights into our value system in human-centred societal challenges the experimental approach of Research through Design and the power of critical disability studies explores philosophical and strategic possibilities to understand the concept of co-Ability. I introduce the term ‘co-Ability’ rooted in the critical approach of posthuman disability studies outlined by scholars such as Rosi Braidotti (2013). It serves as a broad umbrella term under which we can reconsider the potentials of various entities (biological and artificial) enhancing the shared competence rather than dwelling on the oppressive nature
of human-centred norms.
By analyzing the literature review, this thesis addresses the reflective symmetry in key elements between disability studies and design approaches, questions the validity of a homogenous human need and reflects instead on how co-design can become a driving fuel for generating possibilities.
Identifying how design helps to improve the experience of being human, and not necessarily the user experience of a disabled person in prosthesis design development highlights the constraints of seeing a prosthesis as a process instead of a product. To investigate through personal values and situated concerns, the research settled on a case study of prosthesis development with a discursive and self-reflective process. It actively contributed to a better understanding of embodied thoughts on relationships. With the methodological approach of co-design framework, I point to the junctures where technology, bodies, and cultural theory intersect in a decentralized soft assembly in which disability, technology, and design act as equal partners in determining co-Abled formations.
disability studies
prosthesis design
co-Ability
co-design
Research through Design
Social design in the submitted project focused on Design for Social Innovation and Sustainability (DESIS), a strand of design practice with objectives and processes to lay the foundations of social change. When disability is not taking part in communicating design excellence in the power of care, it cooperates to represent sustainable ideas with topical complexity of disability that is more relevant to individuals and the general public. In this view, discursive prosthetic design development carries a more profound and integrative argument that is significantly connected with the prosthesis's viewer. The digitally crafted prosthetic prototypes encode a tangible chain of thoughts resulting from the design synthesis of knowledge and research questions with the central links of the method. The ethical and political dimensions of design for disability do not necessarily affect the user experience of a disabled person exclusively but instead help improve the experience of being human.
The discourse of Design for Social Innovation and Sustainability combined with the nature of creation and the criticality of craftmanship in the ‘maker movement’ with the social situation of disability predominantly attempts to reform everyday life culture and offer changes for the conceding relation between society and the market. Concentrating on the design of enabling ecosystems allows participants to adopt more meaningful roles within the design process. They become people with assets rather than people with problems, which requires a paradigmatic shift in how designers face the development process’ (Manzini, 2015; Munro, 2016). The research through a co-design and prosthetic-design approach demonstrated a powerful method to incorporate the experiential knowledge of a person with a disability into a design process.
The question of aesthetics is an important consideration concerning prosthetic design. Low-cost fabrication technology offers new aesthetical appearances. Design elements created through the Research through Design (RtD) method in the submitted project not only serve as illustrative examples for dissemination, but the related design theory is best considered as a form of annotation, explanation, and direction to features of ‘ultimate particulars’.
There is a reciprocal interaction between design and disability, a relationship familiar with cultural values and material forms, humanities and sciences, technology and aesthetics, reason and emotions. When a prosthesis functions as a social symbol and a political emblem for oneself, the distinction between aesthetics and usability is blurred, or as Jauss discusses, ‘aesthetics just is the usability of an admittedly special kind’.
This design is a broad exploration of the problems of communicating information, ideas, and arguments through a new synthesis of words and images that is transforming the culture and the future. An exploration of the construction of a prosthesis, in which a form and a visual appearance must carry significant argument that unites aspects of art, engineering and natural science, and the human sciences. The new kind of aesthetic transmits novel messages embedded in the artefacts, sensitizing society by eliminating the influence of stigma and divergence with the negative perceptions of difference. The prosthesis artefact created does not follow past and recent tendencies of interpreting a corresponding anatomical reference body part to articulate unclear and unimagined possibilities of an emerging reality. The form of a prosthesis does not need to be based on a bio-normative body model and does not need to be an artificial interpretation of biological limbs.
The program’s locally conducted and internationally valued results with the involvement of persons with disabilities in the innovation process were recognized by European Disability Forum (EDF) and ORACLE digital accessibility scholarship, awarding a researcher with a disability.
The project introduces Luca Szabados as the key character to settle the social situation and investigate her personal experiences within her real-life context to create a prosthetic design as an empirical inquiry that investigates a contemporary phenomenon within its real-life context. Luca’s left lower arm is missing due to a congenital disability. To investigate personal values and situated concerns, the project settled on a case study co-design process to study the instance design’s process. The situated dialogue did not only happen between primary, secondary, or tertiary users and the designer. More importantly, the social situation got embedded in the prosthetic prototypes and designed objects, inviting the general public into the discussion and including the general viewer in the discussion on exploring and understanding disability, ability and norms stereotypes.
The definition of the prosthesis ‘has a rich visual, political and material vocabulary in present time’ such as ‘prosthesis as a metaphor, prosthesis-as-aid of device, a part of the category in the assistive device to support the action, an artificial body part that is ‘integrated into the body’s daily routines’. The discursive context with a person with a congenital disability in the case study locates concerns in the first place on both denotative needs of replacing a body part (that has never been there) and a connotative association on disability (which in Luca’s case is self-questioned).
With the co-design framework, we pointed to the junctures where contextual situations, technology, bodies, and cultural theory intersect in a decentralized soft assembly to act as equal partners in determining co-Abled formations.
A discursive prosthetic design is significant in nature as it can connect with the general viewer by presenting the project's argument instead of being a result of a terminal design production as an absolute masterpiece. Design research does not necessarily involve projects that are later realized as market-ready products; in the tangible material reality of the artefact, science and art meet to expand the extent of the boundaries of design problems. Consequently, the public perception of a socially responsible designer should not only be received when a designer plays a vital role in a ’design for care’ process. A prosthesis’s shape/form/look is not considered merely for usability or for improving social inclusion but for aesthetic purposes. This new kind of aesthetic transmits novel messages embedded in the artefacts, sensitizing society by eliminating the influence of stigma and divergence with the negative perceptions of difference (deviance). To articulate unclear and unimagined possibilities of an emerging reality, the prosthesis artefact does not follow past and recent tendencies of interpreting a corresponding anatomical reference body part.
An exhibition was organized at the doctoral defence to provide an intellectual service to the viewers. Prosthetic prototypes represent the tangible chain of thoughts resulting from the design synthesis of knowledge and research questions with the central links of the method. Art installation of the discursive prosthesis development and research was a comprehensive representation for external audiences (civil society) with broader cultural backgrounds. Calling art to represent scientific results in ‘second-order consequence’ and to affect general culture has a long and respectable history. Art contributed extensively to the constructive process of understanding the world we live in by celebrating, promoting and communicating science.
As a part of the project, a new educational curriculum was built at Moholy-Nagy University of Arts and Design object design department between 2017-2021. As such, reflecting on the local approaches, the critical role of the unique Hungarian remarkable education history resonates with the programs developed with an integrative practice determined by the specific user circle. Csillagház Primary School performs the education and teaching of children with multiple disabilities. The series of educational courses was launched in 2017 and evolved in a ‘generative’ manner from an initial smaller-scale idea responding flexibly to life-like effects in the following years, involving students and lecturers from the University of Applied Arts Vienna. ‘The word “generative” directs attention to a subset where potentially multiple results can be produced using the generating system. The multi-stage educational program was implemented with the participation of M.A. students interpreting contemporary areas of design discourse through critical analysis of disability related to children with multiple disabilities. As a follow-up for each educational program, the publication of the results was well implemented on diverse platforms (conferences, courses, workshops, publications). The study’s locally conducted and internationally valued results that summarize the knowledge from all academic programs and mainly the doctoral research involving persons with disabilities in the innovation process was recognized by European Disability Forum and ORACLE digital accessibility scholarship, awarding a researcher with disability.
The work has also received attention from the Trieste Contemporanea Committee, which collaborates with the Central European Initiative (CEI). The artefact design received the Gillo Dorfles award for best project, emphasizing the high quality of the prosthesis design.
This project demonstrated that co-Ability formulation indicates the relationships between variables in the research, disability and design, disability and society, design and society, prosthetics and society, technology and society, design and art, art and science, humanism and posthumanism. The analysis of theoretical concerns, engaging in dialogue with digital and co-design practice focused on the main questions from a particular single case study project. The reflective symmetry in key elements between disability studies and design approaches questioned the validity of a homogenous human need and reflected on how practical and applied problem-solving can become a driving fuel for generating a sustainable possibility for humanity. The analysis provides output for further exploring the way we use bodily information and the mode our brain encodes our greater shared understandings based on our self-recognitions grounded in Neuropsychological science. For this scope, the literature on critical disability and posthuman studies supports relevant design strategies in the 20th century.
The materiality of digital manufacturing technology was applied, pointing to how we are shifting towards a certain hybrid ‘Mechanodynamical’ Age when a mapped experience leads back to new dynamic goods. In other words, information technologies that are multi-functional, configurable, updateable, and disposable accommodate the need to have the same dynamics in mechanical technologies. Design, technology, and the form of interaction imply that the concepts of ‘becoming’, ‘in the making’, and ‘futurity’ should be studied in hindsight. However, value is also a cultural, historical, and political matter, and technology changes the ‘material practice’ timing.
A prosthesis is not necessarily a medical device or an artificial aid, as most commonly viewed.
The recent Assistive Technology industry covers a large number of mass products, systems and services in the medical and social domains with the aim of inclusion and supporting functional needs. The study confirmed that when developing healthcare, therapy, and motion assistance devices, bringing technology and art/craft closer together is a novel approach to the “monopolized policies linked to techno-centred know-how of a product”, which helps to change the “stigmatizing social identity” of a techno-medically specialized aiding product. The study underlined that it is important for strategies in non-bionormative prosthetic design to effectively communicate ideas and incorporate the viewer’s account into the project.
The embedded part of the investigation, the design tool of the prosthesis leads to theory building of co-Ability in social innovation. Design for Social Innovation and Sustainability (DESIS) stands for a design practice with objectives and processes to lay the foundations for social change. Considering co-Ability instead of human-centred norms could provide an alternative strategy for designers when they lack the understanding and experiential knowledge that comes from having a disability. Although these envisioned changes in behaviour and action alter the world in minor ways at the individual’s level, with collectives and ripple effects, they could culminate in changes to societal structures. In opposition to a pathological political model of disability, this research provides an opportunity for designers not to change recipients of prosthetics but instead to change their sociological context.
One of the valuable outputs of the project is the documented collection of discursive design output. However, the large textual documentation of the research project is intended for ‘Internal focus/audience’ (designers and academics). A Dissertation Submitted to Doctoral School of the Moholy-Nagy University of Art and Design Budapest (MOME DS) In Partial Fulfilment of the Requirements for the Degree DLA (Doctor of Liberal Art).
I plan to further develop the prosthesis design artefact with other researchers, lecturers, and students. A shared university course on co-design – actively involving Luca Szabados and the ‘Modular grip’ prototype (pp. 89-101) - is being prepared with colleagues from Aalborg University and the University of Maryland, Baltimore County (UMBC). Digital data from 3D models and 3D printing technology make it possible for people on different continents to collaborate on projects and share their ideas. We plan to work with Luca Szabados as a professional partner and lecturer who brings her bodily knowledge and personal experiences into the design process rather than as a disabled person in need of help. This plan also represents the knowledge-sharing aspect of the digital technology applied: sharing prosthesis design data could radically impact prosthesis design development processes and plausibly become mainstream. Sharing the digital artefact data on an open-source platform also ensures long-term engagement and impact.
Therefore, the focus during the project was on the transformative objectives of social design. Considering the complex social systems of disability studies for designing prosthesis prototypes supported a discussion of reality’s hidden or implicit nature. co-Ability offers to re-design the understanding of the social architecture within the process.
The project conducted includes a description of the Research through Design (RtD) methodology (e.g., its experimental academic research based on a case study) (Buchanan, 2007; Gaver, 2012; Koskinen et al., 2012; Zimmerman et al., 2007). The study contains a careful theoretical inquiry into the relationship between design and prosthetics, leading to new knowledge. It also includes a detailed analysis to transform a practice project and course series into research with the intention to explore research questions and demonstrate original research in this thesis that contributes to the knowledge of the educational design field. I firmly claim that designing an artefact was not the main aim of this process. I conduct solid and significant research that produces artefacts representing the knowledge gathered.
studied in the doctoral dissertation.
The framework of situated work in the academic design discourse closely connected to disability studies maps out and builds up a view of co-Ability. The discursive co-design process with the active contribution of a person with a disability leads to self-reflections also on my part as a designer. The tangible material conditions of digital craft are considered a process rather than a product, which leads to understanding why design is more than an interface between a material object and its use.
The relationship between ‘head’ and ‘hand’ + ‘materials’ and ‘tools’ manifest themselves in the context, instead of bilateral symmetry critically address the transversal form of understanding the bond that connects them.
This work aims to raise crucial issues that designers should be aware of at a time of great challenges of anthropocentric global societies. This investigation demonstrated that the formulation of co-Ability theory also indicates the relationships between variables in a design project, disability and design, disability and community, design and society, prosthetic and culture, technology and society, design and art, art and science, humanism and posthumanism. It has built an understanding of the reciprocal representations of conscious and unconscious practice in everyday life.
Social design’s ‘problem settings’ are not stable: they are primarily a continuously changing situation influenced by time and progress. They are aligned with local co-design digital crafting methods focusing on lived human aspects, where a person with a constantly evolving disability condition is part of the design process. It goes without saying that in this never-ending process in any location. co-Ability exploration in co-design is suitable if done by partial micro-solutions in prototypes reflecting and challenging new settings and new challenges. The project also discusses connections and background in the contemporary disability culture of Hungary, Budapest, and local studies and educational programs are also conducted as part of the process. As such, reflecting on the regional approaches, the vital role of the unique Hungarian remarkable education history resonates with the joining programs developed with an integrative discipline research practice, which was most importantly determined by the specific user circle. Indeed, we aimed to sensitize university students while collaborating with the special educators of Csillagház Primary School performing the education and teaching of children with multiple disabilities.
2022 Fulfilment of a Doctoral Degree DLA (Doctor of Liberal Art) at Doctoral School of Moholy-Nagy University of Art and Design Budapest (MOME DS)
• 2020 Journal article: Co-designing for inclusion in international/ interdisciplinary teams, International Journal of Education Through Art, Band 16, Nummer 2, 1. Juni 2020, S. 177-196 (20) Publisher: Intellect, DOI: https://doi.org/10.1386/eta_00025_1
• 2019 Book article (H) ’A gondoskodó tervezés és gyakorlati reflexiók’. In eltereader.hu, (Budapest, Hungary: ELTE Bárczi Gusztáv Gyógypedagógiai Kar), pp. 154–166. ISBN:9789637155888 (http://www.eltereader.hu/media/2019/11/Szabalytalan_konturok_2019.pdf)
• 2019 Book article (H) “Co-design – Oktatási programsorozat a gondoskodó tervezés jegyében.” In EGYÜTT OKTATUNK ÉS KUTATUNK! INKLUZÍV MEGKÖZELÍTÉS A FELSŐOKTATÁSBAN, Budapest: Bárczi Gusztáv Gyógypedagógiai Kar, 195–205. (http://www.eltereader.hu/kiadvanyok/katona-vanda-cserti-szauer-csilla-sandor-anikoszerk-egyutt-oktatunk-es-kutatunk/)
• 2019 Full Paper presentation (En) at the 8th biannual Nordic Design Research Society (Nordes) conference at Aalto University, Finland (https://archive.nordes.org/index.php/n13/article/view/463/434)
• 2022 GILLO DORFLES AWARD of the fourteenth International Design Contest Trieste Contemporanea BASICS for the best project. (https://www.triestecontemporanea.it/en/2022/03/30/basics_result_eng/?fbclid=IwAR20u7KzQDspOnRRg3TE9ZIdX5M6z-iJmg9agZAL-KekYZBwIykaCcty6qg)
• 2020 EDF AND ORACLE AWARD FOR A SCHOLARSHIP TO RESEARCHER WITH DISABILITY (http://www.edf-feph.org/newsroom/news/announcement-edf-and-oracle-award-scholarship-researcher-disability)
• 2019-2020 Die Aktion Österreich-Ungarn, Wissenschafts- und Erziehungskooperation 101öu14 Knowledge Sharing Programm co-Ability Research Founding
• 2019 Emerging Scholar Award from Common Ground Research Network at Fifteenth International Conference on Technology, Knowledge & Society (https://techandsoc.com/about/history/2019-conference)
This works questions design about ‘how to care’ and investigates the ethics and aesthetics of changing in relation to the surroundings in terms of bodily experience and societal norms.
This transdisciplinary initiative generated knowledge that manifests the complex taxonomy of embodied perspectives in prosthesis development. These perspectives reflect the practical applicability of the shared understanding of deep and transformative changes. Considering co-Ability instead of human-centred norms provide a sustainable strategy for sustainable equipment, resources and infrastructure. Although these envisioned changes in behaviour and action alter the world at the individual’s level with collectives and ripple effects, they could culminate in changes to societal structures.
In the initiative in opposition to a pathological political model of disability, this project provides an opportunity for designers and related fields not to change recipients of prosthetics but instead to change their sociological context. This improves sustainable outcomes for the industry and the people involved. It addressed the “desire to see a decrease in stigma and a heightened awareness that affect the reality of people living with a disability or, in other words, ‘what people on the ground are feeling'.
The study confirmed that when developing healthcare, therapy, and motion assistance devices, bringing technology and art/craft closer together is a novel approach to the “monopolised policies linked to techno-centred know-how of a product”, which helps to change the “stigmatising social identity” of a techno-medically specialized aiding product.
The initiative underlined that it is important for strategies in non-bionormative prosthetic design to effectively communicate ideas and incorporate the viewer’s account into the project.